It is hard to believe that almost an entire year has passed since we all gathered for what proved to be an amazing 1st annual Path to the Cure, a fundraiser on behalf of our children Dylan Singer, Sam Sernovitz, and other individuals in our community and surrounding areas who suffer with familial dysautonomia (FD) – a life-altering and life threatening Jewish genetic disease.
As a result of your support as a particiant or sponsor of one, we experienced the best in our community and the best of humanity. TOGETHER we raised over $150,000 and had fun doing it! This was a day that would prove to be one we would never forget.
In our continuing effort to raise funds that seek better treatments and an eventual cure for FD, we invite you to once again support the 2nd annual Path to the Cure – a bike/walk tour through Alverthorpe Park in Abington, PA on Sunday April 15, 2012.
Perhaps, this year more than ever our sense of urgency is stronger than ever.
Dylan nearly died this past May. He developed pneumonia and had to be placed on a ventilator at Children’s Hospital of Philadelphia (CHOP). After two chest tube placements, an emergency surgery and a month in the hospital Dylan miraculously recovered and came home.
Most recently, Sam, who is only three years old, spent nearly a week in New York at NYU Langone Medical Center. His daily bouts of severe nausea and retching, dangerously elevated heart rates and erratic blood pressures have kept Sam from enjoying and living his life to the fullest.
This is no way for any child to live and we again ask for your help in raising funds and awareness so that those with FD have a chance at a better, healthy life.
Please check out www.famdys.org/pathtothecure for more information about this amazing event.Not able to make a monetary donation at this time? Perhaps you might like to volunteer or simply come out with your family and friends just to support the cause. Your participation in any capacity would be greatly appreciated!
Much love,
Cindy Singer & Rabbi Larry Sernovitz
Co-chairs, Philadelphia Chapter of the Dysautonomia Foundation