Tag Archives: cystic fibrosis

Become Part of Emily’s Entourage!

Are you looking for a mitzvah project?  We can help you – to help others!  Cystic Fibrosis awareness and fundraising for medical advancements in the treatment of this genetic disease. Cystic Fibrosis (CF) is a chronic, progressive disease that affects the lungs and digestive system, as well as a multitude of other organ systems. Living with CF involves breathing treatments, multiple medications, frequent infections and recurrent hospital stays. There are 30,000 people with CF in the United States and 70,000 worldwide. CF AND TAY SACHS ARE THE MOST COMMON FATAL GENETIC DISEASES AMONG ASHKENAZI JEWS. Emily’s Entourage is named for Emily, […]


A Random Act of Kindness will help make Great Strides

WANTED: Caring, supportive kids (and Moms & Dads) who are interested in sharing a full-filled morning making a difference in the lives of children and adults who battle cystic fibrosis. Jessica Franklin, a 17 year old vivacious Upper Dublin teenager living with cystic fibrosis, is seeking to expand her team of walkers at the upcoming Great Strides Walk-a-thon on Saturday, April 21. Beginning at 10am, supportive families will gather at Citizens Bank Park to schmooze with the Philly Phanatic, munch on complimentary treats, enjoy entertainment and prepare to engage in a 5K trek through the infamous Philadelphian stadium. Jessica commented […]