Tag Archives: FD

Advocating for Jewish Genetic Disease Testing

My name is Cindy Singer. November 6, 1996- a day that my son Dylan was born with familial dysautonomia (FD), one of 19 devastating Jewish Genetic Diseases (JGD’s). It is a day that will forever be remembered as one of the saddest days of our lives. Along with a host of other life threatening symptoms associated with FD, Dylan is also Autistic and non-verbal. 10% of those afflicted with FD are Autistic. Amazingly, Dylan communicates with an iPad via a special needs voice out-put program called the Proloquo. As a family we knew that Dylan would have profound health struggles […]


Take a Path to the Cure!

It is hard to believe that almost an entire year has passed since we all gathered for what proved to be an amazing 1st annual Path to the Cure, a fundraiser on behalf of our children Dylan Singer, Sam Sernovitz, and other individuals in our community and surrounding areas who suffer with familial dysautonomia (FD) – a life-altering and life threatening Jewish genetic disease. As a result of your support as a particiant or sponsor of one, we experienced the best in our community and the best of humanity. TOGETHER we raised over $150,000 and had fun doing it! This […]