Tag Archives: Victor Center

Advocating for Jewish Genetic Disease Testing

My name is Cindy Singer. November 6, 1996- a day that my son Dylan was born with familial dysautonomia (FD), one of 19 devastating Jewish Genetic Diseases (JGD’s). It is a day that will forever be remembered as one of the saddest days of our lives. Along with a host of other life threatening symptoms associated with FD, Dylan is also Autistic and non-verbal. 10% of those afflicted with FD are Autistic. Amazingly, Dylan communicates with an iPad via a special needs voice out-put program called the Proloquo. As a family we knew that Dylan would have profound health struggles […]


Victor Center for the Prevention of Jewish Genetic Diseases at Einstein Medical Center

https://www.victorcenters.org/ Einstein Medical Center Philadelphia 5501 Old York Road Levy 2 West Philadelphia, PA 1914 Contact:  Dr. Adele Schneider, MD GACMG Medical Director Victor Center;  Director, Clinical Genetics Einstein Medical Center Philadelphia, 877.401.1093, stonejos@einstein.edu The Victor Center offers accessible genetic counseling and screenings. On a national level, we work in partnership with healthcare professionals, clergy and the community to create awareness  and organize screenings for the 19 preventable diseases for which 1 in 4 Ashkenazi Jews is a carrier. Our mission is to help ensure the birth of healthy children. The national office of the Victor Center is located in Philadelphia with […]